Just putting a couple pics from this morning... She's opened both up for us.. She loves having mommy by her side..
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Hello world
a small wave at 20 weeks
this was simply an adult pattern shrunk down to infant size..use any materials...or mass producing I used flannel on one side and cotton on the other, sewed around the outside and then cut with pinking shears...for pics of Ireland's masks, please look at her slideshow...I shamelessly promote her cuteness there
The lungs are developing at the same time as the
diaphragm and the digestive system. A diaphragmatic hernia allows abdominal organs to move into the chest cavity, instead of remaining in the abdomen as they are developing. With the heart, lungs, and abdominal organs all taking up space in the chest cavity, the lungs do not have space to develop
properly. This underdevelopment of the lungs is called pulmonary hypoplasia. A diaphragmatic hernia is a life-threatening illness. When the lungs do not develop properly
during pregnancy, it can be difficult for the baby to breathe after birth. Healthy lungs have millions of small air sacs (alveoli), which resemble a balloon filled with air. With pulmonary hypoplasia:
• There are fewer air sacs than normal.
• The air sacs that are present are only able to partially fill with air.
• The air sacs deflate easily due to a lack of a lubricating fluid called surfactant.
When these conditions are present, the baby is unable to take in enough oxygen to stay healthy. The intestines, when relocated in the chest, also may not develop properly, especially if they are not receiving enough blood supply while they are developing. A good blood supply is necessary for the
intestines to develop correctly, and to be healthy and function properly. CDH is also of concern due to possible associated anomalies, which in some cases may include heart, genitourinary, gastrointestinal, central nervous system or chromosomal anomalies.
Informing our friends and family about our battle with CDH. Ireland was born on Aug. 19, 2009 and sadly passed away Aug 30, 2009. Eleven days wasn't nearly enough time with her. She amazed us daily and we will all forever miss her. .........for information on eyemasks that I have made for other CHERUBS and NICU babies, please see the right hand side of this blog.
My e-book
This is a simple e-book about our daughter, Ireland Rose Brady. She had a condition known as congenital diaphragmatic hernia or CDH. Her beautiful life only lasted 11 days. .......in a way, maybe this is more her story.
Ireland first view
Hello world
Ireland Rose
a small wave at 20 weeks
Ireland's eye mask pattern
this was simply an adult pattern shrunk down to infant size..use any materials...or mass producing I used flannel on one side and cotton on the other, sewed around the outside and then cut with pinking shears...for pics of Ireland's masks, please look at her slideshow...I shamelessly promote her cuteness there
About Me
Blog Archive
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2009
(99)
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August
(42)
- Dear Ireland
- Sad news
- Short update
- Being corny/sentimental
- thought morning would never come
- well long night
- 2 steps forward... of course a step back..
- One battle won so far!!!!
- PRAY
- Surgery Tomorrow
- maybe another trial off today or surgery tomorrow
- Sucky day
- RELAX
- Both Blue eyes
- Pictures
- Looking into my beautiful daughters eyes
- various ramblings and introducing nurses
- Chanda and Ireland first hand hold
- Friends and Family
- Still looking good
- Running with the good news and happy birthday Chan...
- GOOD night
- up til now
- some more quick pics
- Her she is... Ms. Ireland Rose Brady!!
- Ireland Rose Brady has arrived!!!
- Water broke?
- pitocin
- Tired
- lots of waiting...
- Once again.. a change in plans!!
- Bad start to the day....but its not the end of the...
- The Final Countdown
- 48 hours and counting down
- 4 more days!!!
- Last appt before Ireland's B-day
- CDH Loss and where I'm at
- Praying for Jackson and small update
- Inversion = flipping baby....or not
- Flipping Ireland!!!
- Good info worth posting
- Excitement, understanding, and the love of my blog
-
▼
August
(42)
What is Congenital Diaphragmatic Hernia?
"Congenital" means "born with." The diaphragm is the breathing muscle that separates the chest cavity and the abdominal cavity. The diaphragm develops when the fetus is about two months old. Congenital diaphragmatic hernia (CDH) is the absence of the diaphragm, or a hole in the diaphragm. This can occur on either the left or right side, but is most common on the left. (Ireland's is on the left.) The contents of the abdomen, including the stomach, intestines, liver and spleen, may go through the hole and into the chest. The contents prevent the normal development of the lung (pulmonary hypoplasia) on that side, and may affect the growth of the other lung. After birth the infant will have difficulty breathing if the lungs are not developed enough.
Why is CDH of concern?
The lungs are developing at the same time as the
diaphragm and the digestive system. A diaphragmatic hernia allows abdominal organs to move into the chest cavity, instead of remaining in the abdomen as they are developing. With the heart, lungs, and abdominal organs all taking up space in the chest cavity, the lungs do not have space to develop
properly. This underdevelopment of the lungs is called pulmonary hypoplasia. A diaphragmatic hernia is a life-threatening illness. When the lungs do not develop properly
during pregnancy, it can be difficult for the baby to breathe after birth. Healthy lungs have millions of small air sacs (alveoli), which resemble a balloon filled with air. With pulmonary hypoplasia:
• There are fewer air sacs than normal.
• The air sacs that are present are only able to partially fill with air.
• The air sacs deflate easily due to a lack of a lubricating fluid called surfactant.
When these conditions are present, the baby is unable to take in enough oxygen to stay healthy. The intestines, when relocated in the chest, also may not develop properly, especially if they are not receiving enough blood supply while they are developing. A good blood supply is necessary for the
intestines to develop correctly, and to be healthy and function properly. CDH is also of concern due to possible associated anomalies, which in some cases may include heart, genitourinary, gastrointestinal, central nervous system or chromosomal anomalies.
Gift of Motherhood by Erma Bombeck in 1980
Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers
of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow, I visualize God hovering over Earth selecting his instruments for
propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.
"Armstrong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudlege, Carrie; twins; patron saints... give her Gerald. He's used to profanity."
Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious, "Why this one, God? She's so happy."
"Exactly", smiles God. "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. "I watched her
today. She has that feeling of self and independence that is so rare and necessary in a mother. You see, the child I'm going to give her has her own world. She has to make it live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you."
God smiles. "No matter. I can fix that. This one is perfect. She has just enough
selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, there is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her child, she will see it as few people ever see my creations. "I will permit her to see clearly the things I see-- ignorance,
cruelty, prejudice-- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her patron saint?" asks the angel, his pen poised in midair. God smiles, "A mirror will suffice."
Chanda's side note:...believe the mirror will break....would request a saint
of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow, I visualize God hovering over Earth selecting his instruments for
propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.
"Armstrong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudlege, Carrie; twins; patron saints... give her Gerald. He's used to profanity."
Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious, "Why this one, God? She's so happy."
"Exactly", smiles God. "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. "I watched her
today. She has that feeling of self and independence that is so rare and necessary in a mother. You see, the child I'm going to give her has her own world. She has to make it live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you."
God smiles. "No matter. I can fix that. This one is perfect. She has just enough
selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, there is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her child, she will see it as few people ever see my creations. "I will permit her to see clearly the things I see-- ignorance,
cruelty, prejudice-- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her patron saint?" asks the angel, his pen poised in midair. God smiles, "A mirror will suffice."
Chanda's side note:...believe the mirror will break....would request a saint
Followers
CDH Info
more CDH babies
- Ava Elizabeth (?-?-07)
- Baby Burnside (induce 08-04-09)
- Baby Rafa (07-14-09)
- Charlie/Gumdrop (02-04-09)
- Jackson Beal (7-29-09)
- James Reeve (06-08-09)
- James Reeve (induced 06-08-09)
- Kaden Alex (04-03-09 to 04-20-09)
- Kamryn and Brooke (6-17-09)
- Kayla Mae (03-04-09)
- Kristen (2-12-06)
- Maximus Evan Griffin (induce 08-10-09)
- Maxton David (03-03-09 to 03-21-09)
- Nayeli Faith (10-22-08)
- Ruby Hope (04-10-09)
AAAAWWW!!! Everyday a little more progress! TOO CUTE!
ReplyDeleteAnne
She is so precious!! Beautiful!!
ReplyDeleteThanks for the new updates and photos. She is too adorable!!!
ReplyDeleteDai
Love the new pics!!! I'm sure you can't wait to hold her, but getting to see both of her blue eyes has to help some. So glad to see her doing better, and Mom too.
ReplyDeleteChrystal
DANG!! she is so darn cute I can't even handle it!! You see her and instantly want to say AAAWWWWW! I cant wait to see her change and progress!! I love her already!!
ReplyDeleteLove, Tree
Beautiful eyes!!! I know her daddy's a goner...she'll be able to get away with anything!
ReplyDeleteMeredith
Beautiful! I hope she continues to do well and let ECMO give her body a chance to grow.
ReplyDeleteShe's even more beautiful with her eyes open! I'm so excited for you guys! Praying for continued improvement.
ReplyDeleteChristy Gilman
thanks so much for the continued updates of our little girl. She's such a miracle to us all. you make us all feel like we're there.She is so precious. And i'm so very happy to hear how supportive and caring the nurses have been. I'm so glad that everyone is there for you all. I enjoy so much to here you both tell us how she is doing and what she means to you. we all are praying for you to get through this and for Irelands continued recovery and healing. God Bless you, and he has. Love Mom/Donna
ReplyDeleteChanda!!! Those are some of the cutest pictures I have ever seen!!! I hope she keeps progressing in a good way!! :) Good luck with everything! I miss you already!!! :) Thanks for the comment on my blog! I appreciate everything you said!
ReplyDelete