Loving our Ireland Rose: This blog is a memorial

Monday, December 7, 2009

This blog is a memorial

well.......Ireland's blog is going to be a memorial for Ireland. I plan on adding a slideshow soon. I began a blog http://www.myverybradylife.blogspot.com/ . .........I was beginning to blog random thoughts here and really don't want that. ......I pray for you all constantly. I love my CDH family and simply need a new start. Come by and visit the new blog if you'd like.

2 comments:

Candice and Rob BealDecember 7, 2009 at 12:45 PM
I will follow the new blog, as i did this one.....I love miss Ireland!
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The Griffin FamilyDecember 19, 2009 at 9:51 PM
Hey there,

I know we dont know each other, but watched each other a little bit during our journeys...I know my husband is the one who found you all and we prayed so much for you...since our kids were in the hospital at the same time.

For what it's worth, I'm a hairdresser in AZ, and now that I'm back to work, people allll want to talk about/hear about my experience. Once of the FIRST things people comment on is YOUR story...since you were linked on our blog. You will never know how many thousand people loved Ireland and your family through that time. SO many women I know have prayed for you, just because they saw your story through my Max's. I think the support and love is so beautiful, from all corners of the world.

Know that Ireland was so deeply cared for by many more than you know. :)

Just wanted to share that with you.
Claire Griffin
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What is Congenital Diaphragmatic Hernia?

"Congenital" means "born with." The diaphragm is the breathing muscle that separates the chest cavity and the abdominal cavity. The diaphragm develops when the fetus is about two months old. Congenital diaphragmatic hernia (CDH) is the absence of the diaphragm, or a hole in the diaphragm. This can occur on either the left or right side, but is most common on the left. (Ireland's is on the left.) The contents of the abdomen, including the stomach, intestines, liver and spleen, may go through the hole and into the chest. The contents prevent the normal development of the lung (pulmonary hypoplasia) on that side, and may affect the growth of the other lung. After birth the infant will have difficulty breathing if the lungs are not developed enough.

Why is CDH of concern?

The lungs are developing at the same time as the
diaphragm and the digestive system. A diaphragmatic hernia allows abdominal organs to move into the chest cavity, instead of remaining in the abdomen as they are developing. With the heart, lungs, and abdominal organs all taking up space in the chest cavity, the lungs do not have space to develop
properly. This underdevelopment of the lungs is called pulmonary hypoplasia. A diaphragmatic hernia is a life-threatening illness. When the lungs do not develop properly
during pregnancy, it can be difficult for the baby to breathe after birth. Healthy lungs have millions of small air sacs (alveoli), which resemble a balloon filled with air. With pulmonary hypoplasia:
• There are fewer air sacs than normal.
• The air sacs that are present are only able to partially fill with air.
• The air sacs deflate easily due to a lack of a lubricating fluid called surfactant.
When these conditions are present, the baby is unable to take in enough oxygen to stay healthy. The intestines, when relocated in the chest, also may not develop properly, especially if they are not receiving enough blood supply while they are developing. A good blood supply is necessary for the
intestines to develop correctly, and to be healthy and function properly. CDH is also of concern due to possible associated anomalies, which in some cases may include heart, genitourinary, gastrointestinal, central nervous system or chromosomal anomalies.

Gift of Motherhood by Erma Bombeck in 1980

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers
of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow, I visualize God hovering over Earth selecting his instruments for
propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.
"Armstrong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudlege, Carrie; twins; patron saints... give her Gerald. He's used to profanity."
Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious, "Why this one, God? She's so happy."
"Exactly", smiles God. "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. "I watched her
today. She has that feeling of self and independence that is so rare and necessary in a mother. You see, the child I'm going to give her has her own world. She has to make it live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you."
God smiles. "No matter. I can fix that. This one is perfect. She has just enough
selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, there is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her child, she will see it as few people ever see my creations. "I will permit her to see clearly the things I see-- ignorance,
cruelty, prejudice-- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her patron saint?" asks the angel, his pen poised in midair. God smiles, "A mirror will suffice."

Chanda's side note:...believe the mirror will break....would request a saint

Loving our Ireland Rose

Monday, December 7, 2009

This blog is a memorial

2 comments:

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What is Congenital Diaphragmatic Hernia?

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Gift of Motherhood by Erma Bombeck in 1980

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