Saturday, August 29, 2009

Short update

I can't say much. Chanda and I have had to worst day ever here... Her morning try off ECMO went so wrong that we haven't stopped crying since then. Her poor little lungs filled with blood and we just about lost her.... They have put Ireland on a whole new ECMO machine now and we've really been told that if they can't get her off of it "soon" that we aren't looking at a very good outcome. It sucks that the machine that is keeping her alive is also her worst enemy because of the blood thinners that have to be used with it she is just bleeding every time they try to take her off. We are just at a lose right now. We still have hope but now the fear is very very real to us. She did very well on the transfer to the new machine and they were going to use less blood thinners to try and curb they bleeding and for now it seems like it has worked. They next 3-4 days will be hell, but whatever the result I love Chanda more than anything and we will be there for each other no matter what. Hope they can just let Ireland rest up and pray the next try will be the one.. LOVE YOU IRELAND!!!!!!!!!!!!

18 comments:

  1. So sorry to hear this guys. Praying for sweet little Ireland and for the whole family. Ireland is such a fighter and is truly an inspiration. Much love. Please know I am here if you ever need me.

    Ash

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  2. I sure wish I could take all this pain away. Since I can't, I will just send you all my love and prayers, and praying so hard that you have a better day tomorrow. Love you sweet Ireland Rose! Bonnie

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  3. You guys are in my prayers!!! I am so sorry this is happening. I know how hard it is to face all these fears and deal with so much. Keep fighting Ireland!!! Sending all my love - Jenn Dyson Gurnsey

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  4. I am so sorry it has been such a hard day! You guys stay strong and united!!! As we have been doing daily our thoughts and prayers are with you. Keep fighting little Ireland.... lots of love and hopefully a better day tomorrow!!
    Jamie

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  5. Praying hard for Ireland. We will add her to our church's prayer list tomorrow AM.

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  6. Lord, I know you are in control. Give Ireland the strength she needs to fight this ugly monster CDH. Please protect and hold baby girl Ireland in your arms. Amen

    Hebrews 4:16: “Let us then approach the throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need.”

    Romans 8:25: “But if we hope for what we do not yet have, we wait for it patiently.”

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  7. My heart is breaking...not the news I expected to hear tonight. Praying hard for your precious little girl. There are no words to comfort you right now, but know there are people around the globe praying for your little girl and family.

    Fight Ireland fight!!! Much love to you, Tracy

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  8. I am heart broken to read this, fight Ireland fight! Praying for Ireland

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  9. I wish I had the right words to comfort you. I am so saddened to read this. Please try to find some comfort in knowing that Ireland is being prayed for from NC, and all over the world. I hate CDH and what it does to families.
    -Kellie

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  10. I am so sorry. I'm sorry Ireland has to go through this. CDH is horrible.

    We're sending you love from Texas.

    Holly

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  11. What devestating news :( I am so sorry Ireland is having such a difficult time coming off ECMO, from the last posts it sounded like she was ready..guess she needs a bit more time to rest. Praying for Ireland,her mommy & daddy too!

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  12. Oh this is such a backslide. She will turn it around, we have to have faith. I am going to do a good ol fashion get on your knees and get real with it! I love you guys you are such trooper's. Don't let this situation make you lose faith! She is still the strong little girl that has been fighting since she was born.

    Tree

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  13. Praying hard for Miss Ireland and you all. I know this hard difficult road. Don't give up Hope.Ava has nearly died on us too many times to count YET she pulled through each time. She wants you to fight with her. She is a gorgeous little girl that still has a LOT of living to do! CDH is a nasty beast but it CAN be overcome. Praying and praying for you all. God is holding your baby in His strong arms until you can safely hold her....AND you will hold her. Keep thinking of that miraculous day!

    ~Terri and Ava
    http://avasllifewithcdh.blogspot.com

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  14. I am sorry that Ireland is having such a rough time. There are no words right now.. all I can say is that I think and pray for all you everyday! My heart hurts when I read your story today! Keep fighting sweet Ireland!
    Joanna(gabriela-monteiro.com)

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  15. I am sorry to hear the latest news. Please find some comfort in knowing that there are thousands of people praying for Ireland. Please let us know if there is anything we can do your family.

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  16. What a terrible day you have had. I hope and pray that tomorrow will bring with it many good and positive things. Sweet little Ireland has had a rough couple of days. Let us all pray, that she can continue to fight, and start healing. Hopefully letting her rest a couple of days, will work to get her off the ECMO.
    God's Blessings to you all!
    Dale from NJ

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  17. OH I HATE TO HERE THAT! THAT DOESN'T MEAN IT'S THE END...I'LL KEEP PRAYING......DANG, ONE OF OUR BABIES HAS TO MAKE IT, AND SINCE JACKSON DIDN'T IRELAND JUST HAS TO! I WILL PRAY FOR YOU ALL SO HARD ALL DAY TODAY....

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  18. I was crushed to hear the news. Everyone at CHERUBS is thinking of you and praying for you. I am so very, very sorry. Whatever we can do, whatever you need... we're here. Even though I lost my son to CDH too... I never know what to say. There are no words...

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